Illinois RCEP Online Resources

• Person-Centered Planning in Rehabilitation Services
• Self-Determination for People with Significant Disabilities
• Employment Support for People with Psychiatric Disability

Person-Centered Planning in Rehabilitation Services

Abery, B., Schoeller, K., Simunds, E., Gaylord, V., & Fahnestock, M. (1997). Yes I can A social inclusion curriculum for students with and without disabilities. Minneapolis, MN University of Minnesota Institute on Community Integration.

Agran, M., Cain, H. M., & Cavin, M. D. (2002). Enhancing the involvement of rehabilitation counselors in the transition process. Career Development for Exceptional Individuals, 25, 141-155.

Americans with Disabilities Act (1990). http://www.usdoj.gov/crt/ada/

Anderson, W., Chitwood, S. & Hayden, D. (1997). Negotiating the special education maze (3rd ed.). Woodbine House.

Bates, P., Miner, C., Heckenkamp, D. & Walter, S. (2001). Person centered transition planning. Springfield, IL Illinois State Board of Education Transition Systems Change Grant funded by the U.S. Department of Education Office of Special Education Programs.

Benz, M. R., Lindstrom, L. & Yovanoff, P. (2000). Improving graduation and employment outcomes of students with disabilities Predictive factors and student perceptions. Exceptional Children, 66, 509-529.

Brolin, D.E. (1995). Career education A functional life skills approach (3rd ed.). Englewood Cliffs, NJ Merrill.

Bullis, M., Davis, C., Bull, B., & Johnson, B. (1997). Expectations versus realities Examination of the transition plans and experiences of adolescents who are deaf and adolescents who are hearing. [Electronic version]. Rehabilitation Counseling Bulletin, 40, 251-265.

Butterworth, J., Hagner, D., Heikkinen, B., Faris, S., DeMello, S. & McDonough, K. (1993). Whole life planning A guide for organizers and facilitators. Boston, MA Institute for Community Inclusion, UAP.

Condon, C., Fichera, K., & Dreilinger, D. (1993). More than just a job Person-centered career planning. Institute Brief, 12(1). Available from

Condon, C., Fichera,K., & Dreilinger, D. (October, 2003). More than just a job Person-centered career planning. The Institute Brief. Boston, MA Institute for Community Inclusion.

deFur, S. H. (January, 1999). Transition planning A team effort. Transition Summary A Publication of the National Information Center for Children and Youth with Disabilities, TS10. Available online at http://www.nichcy.org/pubs/transum/ts10txt.htm

Gowdy, E. L., Carlson, L. S., Rapp, C. A., (2003). Practices differentiating high-performing from low-performing supported employment programs. [Electronic version]. Psychiatric Rehabilitation Journal, 26, 232-239

Himmelman, A. T. (1995). Collaboration for change. Minneapolis, MN Himmelman Consulting Group .

Horn, J. R., Trach, J. S. & Haworth, S. L. (1998). Secondary transitional experience program A descriptive analysis of outcomes of high school exiters. Research in Rehabilitation Counselor Training on Supported Employment and Transition (pp. 123-150). Urbana-Champaign, IL University of Illinois, Transition Research Institute.

Hudson River Center for Program Development, Inc.; National Center for Education Statistics, (1997); Social Security Administration, (2000); SRI International.

Illinois State Board of Education. TOTAL Transition Outreach Training for Adult Living Project.

Individuals with Disabilities Education Act Amendments, 1997, 20 U. S. C. 1400 et seq. Retrieved March 3, 2004, from, http://www.ed.gov/offices/OSERS/Policy/IDEA/the_law.html

Institute on Rehabilitation Issues (2000). The familiy as a critical partner in the achievement of a successful employment. 26th Institute on Rehabilitation Issues.

Improving family involvement in special education. Research Connections in Special Education. Fall 2001 No. 9

Johnson, L. J., Zorn, D., Tam, F. K. Y., Lamontagne, M., Johnson, S. A. (2003). Stakeholders' views of factors that impact successful interagency collaboration. Exceptional Children, 69, 195-209.

Jordan, M., Yager, A. S., Enein-Donovan, L., Fike, J., Gilmore, M., & Tautkas, L (2002). Starting with me A guide to person-centered planning for job seekers.Tools for Inclusion, 10(1).

Kerka, Sandra. (2000). Parenting and career development. ERIC Digest No. 214.

Ketterson, T.U., and Blustein, D.L. (December 1997). Attachment relationships and the career exploration process. Career Development Quarterly, 46(2), 167-178. (EJ 562 308)

Kohler, P.D., Field, S., Johnson, J.R., & Izzo, M. (1997). Transition from school-to-life A workshop series for educators and transition service providers. Champaign, IL Transition Research Institute, University of Illinois at Urbana-Champaign.

Lankard, B., (1995). Family Role in Career Development. ERIC Digest No. 164.

Lehmann, J., Cobb, B., & Tochterman, S. (2001). Exploring the relationship between transition and educational initiatives. Career Development for Exceptional Individuals, 24, 185-197.

Mattessich, P., Murray-Close, M., & Monsey, B. (2001). Collaboration What makes it work (2nd ed.). Saint Paul, MN Amherst H. Wilder Foundation.

Miner, C. & Bates, P. (Sept/Oct 1997) Person-centered transition planning. Teaching Exceptional Children. The Council for Exceptional Children.

Monadnock Developmental Services (1999). Dream Quest A game to teach the dynamic process of person-centered planning. Keene,NH Monadnock Developmental Services.Available from http://www.mds-nh.org/mds/html/dreamquest.htm

Morningstar, M. E., Kleinhammer-Tramill, P. J., & Lattin, D. L. (1999). Using successful models of student-centered transition planning and services for adolescents with disabilities. Focus on Exceptional Children, 31, 1-19.

Moses, B. (1998) Career Intelligence The 12 New Rules for Work and Life Success. San Francisco Berrett-Koehler p.245.

Mount, B., & Zwernick, K. (1988). It’s never too early, it’s never too late A booklet about personal futures planning. Minneapolis, MN Governor’s Planning Council on Developmental Disabilities.

NCSET (March, 2002). Promoting effective parent involvement in secondary education and transition. Parent Brief. Available online at http://www.ncset.org/publications/viewdesc.asp?id=208

Paiewonsky, M. & Tufts, S. (1999). Recreation in the community, Institute Brief, 9(1).

Rehabilitation Services Administration Region V CRP-RCEP.(2003)  Person-Centered Planning It’s Not Just about a Meeting. University of Illinois at Urbana-Champaign.

Salembier, G. & Furney, K. (1997). Facilitating participation Parents’ perceptions of their involvement in the IEP/transition planning process. Career Development for Exceptional Individuals, 20(1), pp.29 – 42.

Schuster, J., Graham, S., & Moloney, M.. (April, 2000). Building a future working with the post-high school expectations of students & parents. Research to Practice. Boston, MA Institute for Community Inclusion.

Steere, D.E., Wood, R., Pancsofar, E.L., & Butterworth, J. (1990). Outcome-based school-to-work transition planning for students with severe disabilities. Career Development for Exceptional Individuals, 13(1), 57-69

Stodden, R. A., Jones, M. & Chang, K. (2002) Services supports and accommodations for individuals with disabilities An analysis across secondary education, postsecondary education and employment. A white paper developed for the Post-School Outcomes Network of the National Center on Secondary Education and Transition (NCSET) at the University of Hawaii at Manoa. Available online at http://www.ncset.hawaii.edu/publications/pdf/services_supports.pdf

Szymanski, E. M. (1994). Transition Life-span and life-space considerations for empowerment. Exceptional Children, 60, 402-410.

The Rehabilitation Act 1973 and its amendments, 29 U. S. C. 794. Retrieved March 3, 2004 from, http://www.ed.gov/policy/speced/reg/narrative.html?exp=0

The Person-Centered Planning Learning Site, by Cornell University http://www.ilr.cornell.edu/ped/tsal/pcp/index.html

Timmons, J. & Whitney-Thomas, J. (March, 1998). The most important member Facilitating the focus person’s participation in person centered planning. Research to Practice. Boston, MA Institute for Community Inclusion.

Turnbull, A.P. & Turnbull, H. R. (1996). Self-determination with a culturally responsive family systems perspective Balancing the family mobile. In L.E. Power, G.H.S. Singer, & J. Sowers (Eds.), On the Road to Autonomy Promoting Self-Competence in Children and Youth with Disabilities. Baltimore, Maryland Paul Brookes.

Way, W.L. & Rossmann, M.M.(1996). Learning to work How parents nurture the transition from school to work. Family Matters in School to Work Transition. Berkeley, CA National Center for Research in Vocational Education. (ED 391 885).

Wehman, P., Barcus, M. & Wilson, K. (2002). A survey of training and technical assistance needs of community-based rehabilitation providers. Journal of Vocation Rehabilitation, 17, 39-46.

Wehman, P., Everson, J.M. & Reid, D.H. (2001) Beyond programs and placements Using person-centered practices to individualize the transition process and outcomes. In P. Wehman (Ed.), Life Beyond the Classroom Transition Strategies for Young People with Disabilities (3rd ed.). Baltimore, Maryland Paul Brookes

Whelley, T., Hart, D. & Zafft, C. (2002) Coordination and management of services and supports for individuals with disabilities from secondary to postsecondary education and employment. A white paper developed for the Post-School Outcomes Network of the National Center on Secondary Education and Transition (NCSET) at the University of Hawaii at Manoa.

Whitney-Thomas, J. & Timmons, J. C. (1998). Building authentic visions How to support the focus person in person centered plannning. Research to Practice, 4(3).

26th Institute on Rehabilitation Issues (2000). The dynamic role of families (Chapter 2). The Family as a Critical Partiner in the Achievement of a Successful Employment Outcome.

Self-Determination for People with Significant Disabilities

Reference Materials

Brown, F., & Gothelf, C. R. (1998). Self-determination for individuals with the most severe disabilities: Moving beyond chimera. Journal of the Association for Persons with Severe Handicaps, 23, 17-26.

Buck. P. (1943). What America means to me. New York: Columbia University Press.

DeJong, G. (1979). Independent Living: From social movement to analytic paradigm. Archives of Physical Medicine and Rehabilitation, 60, 435-466.

Fetterman, D. M, (1996). Empowerment evaluation: An introduction to theory and practice. In D. M. Fetterman, S.J. Kaftarian, & A. Wandersman (Eds.), Empowerment evaluation: Knowledge and toold for slef-assessment and accountability (pp. 3-46). Thousand Oaks, CA: Sage.

Field, S. (1996). Instructional strategies to promote self-determination for students with learning disabilities. Journal of Learning Disabilities, 29, 40-52.

Field, S., Martin, J., Miller, R., Ward, M., & Wehmeyer, M. (1998). A Practical Guide for Teaching Self-Determination. The Council for Exceptional Children, U.S.A.

Getzel, E. E., & deFur, S. (1997). Transition planning for students with significant disabilities: Implications for student-centered Planning. Focus on Autism and Other Developmental Disabilities, 12, 39-49. Retrieved September 3, 2002, from ERIC.

Leggett, M. N., & Bates, P. (1996). Recommendations for enabling and enhancing self-determination during the transition planning Process. Focus on Autism & Other Developmental Disabilities, 11, 251-254.

Rapley, M., Kiernan, P., & Antaki, C.(1998). Invisible to themselves or negotiating identity? The interactional management of "being intellectually disabled." Disability & Society, 13(5), 807- 827.

Wehmeyer, M. L. (1998). Self-Determination and individuals with significant disabilities: Examining meanings and misinterpretations. Journal of the Association for Persons with Severe Handicaps, 23, 5-16.

Wehmeyer, M., Agran, M., & Hughes, C. (1998). Teaching self-determination to students with disabilities: Basic skills for successful transition. Baltimore, MD. Paul H. Brooks Publishing Co.

Wolfensberger, W., Nirje, B., Olshansky, S., Perske, R., & Roos, P. (1972). The Right to Self-Determination (chapter in). The Principal of Normalization in Human Services (177-193).

Web Resources

ADAPT (http://www.adapt.org)
ADAPT organized around the right to access public transportation. Now that they have been so successful in realizing this right, they are taking America to task moving people with disabilities out of nursing homes and into the community with attendant services.

Impact (http://www.impactcil.org )
The website for the organization Impact provides the philosophy of the independent living movement as well as its history and features some individuals who have been key leaders in the movement.

The Center for Self-Determination (http://www.self-determination.com)
. It provides resources/links to governmental, private, special interest, and other agencies related to self-determination. The site also offers position papers on issues such as aging, guardianship, and poverty in regards to self-determination.

National Rehabilitation Association (http://www.nationalrehab.org)
Advocacy information as it related to self-determination is available.

Employment Support for Persons with Psychiatric Disabilities

Reference Materials

• Diagnostic and Statistical Manual of Mental Disorders (Fourth Edition) a.k.a. DSM IV; American Psychiatric Association, 1994; ISBN 0-89042-062-9
  The "Bible" for diagnosing any type of mental disorder, including mental illness, retardation, personality disorder, autism, and so on.

• Disability Handbook, (Second Edition), Department of Rehabilitation Education and Research, University of Arkansas, 1994; Order at (501) 575-6412
  This handbook provides thumbnail sketches of about 40 different disabling conditions, written primarily to be used as a desk reference by state Vocational Rehabilitation counselors. As such, it?s short on applied information re: working with people on jobs, but has a lot of good stuff on common functional limitations, impediments to employment, and considerations in developing plans.

• Medical, Psychosocial, and Vocational Aspects of Disability, edited by Martin G. Brodwin, Fernando Tellez, and Sandra Brodwin; Elliott and Fitzpatrick (706-548-8161)1993; ISBN 0-945019-34-3.
  This excellent book contains thirty-three chapters describing common disabilities and generally used rehabilitation approaches for each. The chapters end with a case study and review questions

• Providing Employment Support for People with Long-Term Mental Illness: Choices, Resources, and Practical Strategies; by Laurie Ford; Paul Brookes 1995; ISBN 1-55766-190-1;
  Modesty prevents the author from raving about her own book, but you might want to check it out if you have a chance. Fully illustrated with humorous drawings and full of applied information.

• Making it Work: Supported Employment for Persons with Severe and Persistent Mental Illness, Kathie Brieve and Beth De Point, Rise Incorporated, St. Paul, Minnesota; (612) 786-8334
  An excellent, practical handbook the includes chapters on vocational service delivery strategies and managing mental illness in work settings.

• Working on the Dream: A Guide to Career Planning and Job Success by Don Lavin and Andrea Everett; Rise, Incorporated; Spring Lake Park, Minnesota; (612) 786-8334.
  This is a wonderful book that is intended as a "self-administered, step-by-step career planning guide" for use by people with mental illness. Participants are guided through choosing a career path, identifying personal goals, organizing service plans, developing partnerships with employers and service providers; and learning self-management and advocacy.

• Providing Vocational Services: Job Coaching and Ongoing Support for Persons with Severe Mental Illness by Mark Furlong, Jessica A. Jonikas, Judith A. Cook, Lisa Hathaway, and Susan L. Goode; Thresholds National Research and Training Center on Rehabilitation and Mental Illness; (312) 348-5522; 1994
  This manual has good hands-on advice on supporting people with LTMI, including chapters on developing a relationship with the client and providing culturally sensitive services as well as the standard job development, job support, etc.

• Surviving Schizophrenia: A Family Manual (third edition) by E. Fuller Torrey; Harper and Row, 1995; ISBN 0-06-095076-5; $13.00
  A great book on schizophrenia, easily understandable and full of information about how the disease works and how it affects those who live with it.

• Psychiatric Rehabilitation , by Carlos Pratt, Kenneth Gill, Nora Barrett, and Melissa Roberts; Academic Press 1999; ISBN 0-12-564245-8
  An excellent background book on mental illness, and psychiatric rehabilitation treatment approaches. One chapter on vocational and educational rehabilitation has some specific suggestions; but as a whole the book is most useful as a background text complete with class exercises.

• Vocational Impact of Psychiatric Disorders; a Guide for Rehabilitation Professionals; by Gary Fischler and Nan Booth; Aspen Publishers, 1999; ISBN 0-8342-1251-X
  A very good overview of many disorders, including personality disorders, and their effects on employment along with vocational strategies and accommodations. A great companion book to the DSM-IV.

Resources from UIC National Research and Training Center

• Casey, A., Tisdale, F., Jonikas, J. & Cook, J.A. (1992). Methods for Managing Stress in the Workplace: Coping Effectively on the Job. Chicago, Illinois: UIC National Research and Training Center.
  This curriculum helps mental health consumers/survivors learn effective methods of stress management to cope with the pressures of employment. Techniques include identifying and coping with job-specific stressors, physical relaxation, deep breathing exercises, and assertiveness training.

• Jonikas, J., Casey, A. & Cook, J.A. (1992). Sustaining Employment: A Curriculum for Social Skills at Work. Chicago, Illinois: UIC National Research and Training Center.
  Created to enhance social skills of people who have secured or are currently seeking community employment, this manual includes information and role-play activities for a variety of job-related situations, such as socializing with co-workers, requesting a raise, getting along with supervisors, employee rights and the ADA, and friendships or romances at
  work.

• Tisdale, F., Casey, A., Jonikas, J. & Cook, J.A. (1992). Dealing with Difficult Choices About Drinking and Drug Use: Abstinence and Achievement on the Job Curriculum. Chicago, Illinois: UIC National Research and
  Training Center.
  This curriculum addresses substance abuse and medication issues in the workplace. Sessions focus on general information regarding addiction and psychotropic medications, the consequences of mixing alcohol and drugs
  with prescription medications, peer pressure to sue substances during or after work, occurrence of relapse, and the use of self-help, twelve-step recovery groups.

Resources from NAMI

The National Alliance for the Mentally Ill supplies many excellent references about long-term mental illness written for consumers and family members. These are available at very reasonable prices. Their phone number is (703) 524-7600; you can also order off their website at www.nami.org. Some examples:

• Coping with Mental Illness in the Family (NAMI Book 6), by Agnes Hatfield; $2.50
  While not vocationally oriented, this is an excellent booklet that gives a brief overview of the major mental illnesses and common treatments, as well as ways that families can provide support (creating a supportive environment, solving problems of everyday living, planning for long-term care and rehabilitation).

• Understanding Low Motivation in Mental Illness, by Agnes Hatfield; $1.00
  This brief (6 page) pamphlet covers such issues as low motivation as a part of the illness and as a response to mental illness, identification with the sick role, protective withdrawal, helplessness and despair, and loss of self-esteem.

• Psychoactive Drugs and Their Effects on Mentally Ill Persons, by Jean Bouricius; NAMI Book No. 3; 1989; $5.60
  This handbook was written for families and consumers, and provides straightforward information at a very reasonable price.

• Lithium and Manic Depression: A Guide, by the Lithium Information Center, Dean Foundation for Health, Research and Education; 1992 (obtained through NAMI; $3.50)
  A booklet designed for consumers and addressing such issues as how lithium works and why salt and water are important for lithium users.

Web Resources

• The National Institute of Mental Health (http://www.nimh.nih.gov)
  : The Federal agency that conducts and supports research related to mental disorders, mental health and the brain
• American Psychiatric Association (http://www.psych.org/public_info)
• Clinical Tools, Inc.
• Internet Mental Health (http://www.mentalhealth.com)
• National Mental Health Association (http://www.nmha.org)
• Center for Psychsocial Rehabilitation (http://web.bu.edu/SARPSYCH)
• National Alliance for the Mentally Illness (http://www.nami.org)
• UIC National Research & Training Center (http://www.psych.uic.edu/eidp)

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